Saturday, January 3, 2009

Lata's Story

Name: Lata (name changed)
Age: 27
Marital Status: Widowed.
Children: Two a 12 year old Daughter and a 9 year old son.

Her Story
In 2004, Lata’s husband 'Jay Kumar' had to be hospitalized, reason he had a severe bout of diarrhea which had dehydrated him. Jay Kumar was taken care of in the hospital at Cuttack by his older brother. Two days after Jay Kumar's hospitalization Lata was taken to the hospital to get her blood tested, nobody talked or explained to her why her blood was being tested. Lata was taken to the hospital twice, and soon after her report was delivered, everybody’s behavior towards her changed. Her mother-in-law beat her and kicked her out of the house.
She went back to her parent’s house. Lata's brother immediately came to meet her husband and in-laws. Lata’s brother returned back angry and slapped Lata and asked her what sin had she committed and who had she slept with. Lata was shocked, she kept denying. Lata's mother believed that her daughter would never do anything wrong and protected her from her brother’s anger. After three months, Lata's brother-in-law came and asked Lata to come back to the house. When Lata returned, her mother-in-law angrily said,” you have given my son AIDS so you have to serve and take care of him". Lata her husband and her children stayed in a ramshackle hut far from the main house, none of the family members came to her house, she was asked to keep take water from a separate pond, and also asked not to come into the main house. Lata’s family was treated as outcastes.

Jaya Kumar died two months later. Soon after he was cremated, Lata's in-laws asked Lata to leave with her two children. Lata now lives with her parents and tries to make some sense of what has happened. Lata for a long time did not know how she got the disease; she believed for a long time that she was the one who gave the disease to her husband. In 2007 she started working with a NGO and realized that she had not given her husband the virus, and her truck driver husband could be the one to give her the virus. The NGO took her and her children to the nearest VCCTC and she got her children tested and also got herself tested, her test came back positive whereas her children were negative. She decided to demand a share of her husband’s property from her in-laws who predictably refused. With the support of the NGO, Lata fought tooth and nail with her husband’s family for her husband's share of the property and finally managed to get his share for the children.


This is a true incident and certain questions that this incident always raises are:

1. How can a hospital test blood without counseling a client?
2. Why are certain quality checks which are mandatory and non negotiable not being promoted in hospitals and by Government which would support and promote the rights of clients?
3. Why are health care providers so callous about the rights of the clients?

I always use this incident in my trainings as we rarely talk in our trainings about ways and key steps to be undertaken to establish strong referral linkage mechanism which would promote spouse/partner counseling. This is important and imperative as our counselors are not well versed and trained in spouse/family counseling nor do they promote it as much as it should be done.

1 comment:

rashmita said...

This type of human stories are always happenning around us.Once I have a verbal warfare with a female counselor of Koraput for similar situation. According to her about 20-25 people are coming for HIV testing per day. So, it's difficult on her part to offer a qualitative counselling. So, they usually fill up the formats & get it signed by the client that he/ she is testing voluntarily. If the result is negative, then, the report is given to the concerned person or any person related to him/ her. But, if he is positive, then the report will be given to the concerned person only.

But, A question arising in my mind that are they maintaining confidentiality in true sense?????? Only +ve report will not be given to any person related to him implies he is positive. So, the systen is faulty in itself. Then, how can a person dare to do HIV testing without confidentiality ?

Even if, I shared the same in a forum with OSACS. But, I did not see any major steps are taken for the same.So, imagine, if it is happenning in a tribal district Koraput, what's about other ICTCs where many people are doing HIV testing. I feel it's a mumbo jumbo of the system.Lots of funds are incurred for HIV prevention & care and supporrt. So, How far the people will access the services voluntarily is question for all of us.

Before 02 years I have gone to skin dept. of Govt. District Hospital for a skin infection of mine. The doctor immediately suggested for HIV testing, blood, urine & fasting sugar testing etc.I know I have no such risks for HIV infection. But, I have done it without counselling because the counselors knew that I know everything about HIV testing & counselling. I assured myself that, perhaps because of skin rashes the doctor suggested me for testing or to fullfill the target given by NACO.
I do not know much about HIV surveillance in STD clinics. But, I am also not suffering in STIs. So, why he has recommended the HIV testing? It's a question for me till date.

So, you imagine the system & how can we contribute to reform/change the system.